This is like riding a rollercoaster. Some days Brett is ok, and others he has these vicious seizures that would rip your heart out. Some days we can look at him and tell he feels a little better, and then there are days where we notice that the seizures (and the violent rocking back and forth of his head) have created a bald spot at the back of his head. Some days he makes his talking noises, other days he doesn't utter a sound.
We (90% Mommy) are still cathing him every four hours. We're doing our best to get rid of his UTI (s). I might as well call them plural because he seems to always have a new organism lurking. I just wish for one good week for him.
We had to send our weekend nurse packing - she was unreliable and basically not doing things the way we would like. Our other nurse resigned from his case this week to take a case closer to her house. That's right - no nurses, although the agency we use has promised qualified nurses will be sent out for us to interview soon. Of course, I have offered to raise hell at the agency, but Lisa wants to be diplomatic. She's right, I'm sure.
On the good side, Kent made JV baseball, and Clay made the middle school team. I am proud of my big kids, but they better get those grades up or I will turn into my Dad and ground them from playing. Like my ex will ever allow that! To her, C's stand for Cool.
I spoke to some old friends recently. It was good to catch up with Tim, Frank, and my cousin Chris. I even talked to Ol' Sal Keeney. He married up, that boy did. OK, so they all did. Me, too.
Work is tough right now. We have underperformed for about a year, and I get the brunt of it. I think we're about to turn a corner, so maybe I can get home before dark!
I am trying to remain my old self. I still like a good fart. I still have a touch of the redneck genes that run through my body. Enough to drink beer in the driveway, but not enough to go to Talladega. That should be all the explanation needed. I hope you will all bow your heads and pray for an improved quality of life for Brett, some rest for Lisa, and peace with what is surely to come.
David
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2 comments:
David,
I appreciate the blog entry and the update on all that has been going on with Brett. Your witing lets me know how best to pray for all of you.
I don't pretend to know and would never minimize all that you endure as you carry out God’s plan of caring for your precious boy. The journey that you have been called to is one that requires courage and strength beyond that which a human can attain on his own. The example that you set with the faith that you so clearly exhibit is one that I hope to follow and display in my own life.
My thoughts and prayers are with you daily. May God give you peace, rest strength and wisdom as you take every day minute by minute trusting Him.
Prayerfully,
Melissa Melvin
Dear David,
The unconditional love you and Lisa have for all of your children is an inspiration to me. Please know that. It brings me closer to God in my own journey.
Enjoying a good fart is something you and Willie Bennett certainly had in common. : ) Thank goodness you continue to hold onto that wonderful sense of humor through the challenges you face. You are authenic and your path is blessed. I am very proud to call you my friend.
I continue to keep your family in my prayers and to send Brett every good thought of Spring I can think of throughout my day. When I see a tulip blooming, I send it to him. When Waylon and Willie run like the wind in the backyard with the freedom and lack of worry only puppies have, I send it to him. When I forget how blessed I am, I stop and think about Brett, and find a simple and pretty moment in my neighborhood, such as the boys of summer practicing baseball across the street, and I send it to him.
Brett is such a blessing. Thank you for sharing your story with me.
Much love, Mel
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